Hummingbirds by Jodi Bassett
This essay expands on the idea of hummingbirds as a metaphor for Myalgic Encephalomyelitis.
A Million Stories Untold by Jodi Bassett
When you have M.E. it's hard to explain it properly to everyone around you when most of the time you are so ill you can barely remember your own name! This paper is designed to help explain to a sufferers family members and friends that M.E. has nothing to do with being tired and that all the rumours they may have heard about it aren't true. It explains all the facts using hard evidence from the world's leading M.E. experts and is fully referenced. A must-read for friends and family members.
What is Myalgic Encephalomyelitis? by Jodi Bassett
A historical, political and medical overview of M.E. *a must-read*
Myalgic Encephalomyelitis: The Medical Facts by Jodi Bassett
A purely medical overview of the illness including detailed research findings.
Because of the politics and financial interests involved in M.E. research it is important that before you read anything about the illness that you understand the context in which it was written.
The Ultra-comprehensive Myalgic Encephalomyelitis Symptom List. by Jodi Bassett
Most symptom lists are based on the bogus 'fatigue' model and so leave out all the neurological, cardiac, cardiovascular, immune system and other symptoms which truly define the illness. A comprehensive symptom list is an important tool for anyone with M.E.
What it feels like to have Myalgic Encephalomyelitis: A personal M.E. symptom list and description of M.E. by Jodi Bassett
This paper combines the available research on M.E. with a personal description of the illness to try to explain what it really feels like to have M.E. This is not just a second 'list' of symptoms - more than 50 individual symptoms (and other characteristics) of M.E. have been described in detail. new
Testing for M.E. by Jodi Bassett
A basic overview of some of the series of tests which can be done to help confirm a suspected M.E. diagnosis (and also contains further information on many other aspects of diagnosis).
The misdiagnosis of CFS by Jodi Bassett
None of the definitions of CFS defines M.E., so what do they define? What does a diagnosis of CFS actually mean? new
Smoke and Mirrors by Jodi Bassett
This paper looks at the lack of evidence (and financial and political motivations) behind the 'behavioural' model of M.E. and outlines a strategy for the resolution of the confusion caused by the 'CFS' disease category.
The effects of CBT and GET on patients with Myalgic Encephalomyelitis by Jodi Bassett
This paper looks at the physical effects of CBT (psychotherapy) and GET (exercise) on patients with M.E.
Myalgic Encephalomyelitis Research and Articles compiled by Jodi Bassett
A collection of literally HUNDREDS of some of the best ME research and articles, from some of the worlds leading researchers, doctors and ME/ICD-CFS advocates.
The CBT and GET database compiled/written by Jodi Bassett
The database is a comprehensive guide to the use of CBT and GET on patients with Myalgic Encephalomyelitis. It contains excerpts and links to literally hundreds of articles and research studies which expose the lack of scientific legitimacy (and the hidden financial and political motivations) underlying the 'behavioural' paradigm of M.E. and the use of these interventions.
A CBT/GET Warning Letter written by Clytie Siddall and Jodi Bassett
Once you have tried everything to avoid being forced to participate in CBT or GET programs against your will, it might be a good idea to send those who are recommending and/or going to be administering the program/s a warning letter such as this one. This letter politely but firmly informs those involved of the scientific facts, and warns them that you or your family will sue if you are harmed or killed by these unethical and unscientific interventions. new
The Myths about M.E. by Jodi Bassett
Fatigue Schmatigue by Jodi Bassett
This paper explains how the fraudulent 'fatigue' construct of Myalgic Encephalomyelitis came into being.
See also:
Energy Schmenergy by Jodi Bassett
If not ‘fatigue’ then.. what? by Jodi Bassett
3 Part Myalgic Encephalomyelitis Ability and Severity Scale by Jodi Bassett
The scales are designed to be used by M.E. sufferers to measure improvements and changes over different aspects of their illness over time.
Treating Myalgic Encephalomyelitis - The Basics by Jodi Bassett
A guide to some of the basics you need to know to live with, cope with and to treat M.E.
Treating Myalgic Encephalomyelitis - Avoiding Overexertion by Jodi Bassett
Everything you need to know about the single most important thing you can do to give yourself the best chance at having your best possible prognosis.
Myalgic Encephalomyelitis book reviews - book reviews by Jodi Bassett
Myalgic Encephalomyelitis Activism and Advocacy by Jodi Bassett
Myalgic Encephalomyelitis Activism Gear, and Friendship Gear by Jodi Bassett
General ME Quotes compiled by Jodi Bassett, and;
Quotes by ME sufferers
Quotes from ME political discussion groups
On so-called 'fatigue' in ME...
On the supposed role of 'stress' in ME...
Quotes on the outbreaks (and infectious nature) of ME
Quotes from ME sufferers on CBT and GET
Myalgic Encephalomyelitis vs Fibromyalgia by Jodi Bassett
Fibromyalgia and Myalgic Encephalomyelitis (and Lyme disease, MCS and GWI etc.) are distinct and unique illnesses and it is vitally important that they are always seen that way for the benefit of all patients involved.
Case Studies compiled by Jodi Bassett
My comments on the CDC's latest 'CFS' press release by Jodi Bassett
This press release unbelievably claims that the CDC has just found 'the first credible evidence that CFS is a biological illness.'
This text also includes additional comments about the CDC/CFIDS Association's 'Faces of CFS' (propaganda) campaign, plus links to articles by other authors on this important topic.
My comments about the current (worrying) state of Australian ME societies
by Jodi Bassett
These comments follow, and are relevant to, a recent book review.
Key concepts of the Professor Hooper ‘Engaging with M.E.’ DVD Compiled by Jodi Bassett, May 2005
Practical Hints for Coping with Myalgic Encephalomyelitis by/compiled by Jodi Bassett
Hints for Coping with Myalgic Encephalomyelitis Emotionally by/compiled by Jodi Bassett
Myalgic Encephalomyelitis Support Groups compiled by Jodi Bassett
How do you...? by Jodi Bassett
See About my Writing to read about how I wrote my first ever ME essay or About my Artwork to see how I manage to be able to paint and draw a bit (sometimes) despite having a very ME affected brain.
See also:
My Myalgic Encephalomyelitis story by Jodi Bassett
A day in the life of severe Myalgic Encephalomyelitis by Jodi Bassett
About the Author by Jodi Bassett
About information on my own illness on the site... by Jodi Bassett
What it feels like to have Myalgic Encephalomyelitis: A personal M.E. symptom list and description of M.E. by Jodi Bassett
About this website.... by Jodi Bassett
About the strong political views on this site... by Jodi Bassett
Am I affiliated with any groups or organisations? by Jodi Bassett