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Tell a friend about this website...

Cut and paste the text below into a new email to send a recommendation and a link to this site to a friend, doctor, or family member or even a whole group of people you would like to see it - the more the better!

(Copy only the text between the lines)


Subject header: A website for you to see: A Hummingbirds Guide to M.E.

Hi,

I just found a really interesting website that I think you might like to see too. It is called 'A Hummingbirds Guide to Myalgic Encephalomyelitis' and is available through this link:

www.ahummingbirdsguide.com

The site explains what M.E. is, and the long history of M.E. as an acute onset organic neurological disorder which occurs in epidemic and sporadic forms and that can be extremely severe (or even fatal). The site also explains the difference between M.E. and CFS, including why a diagnosis of CFS is always a misdiagnosis. There is also information there about how to cope with M.E. plus a comprehensive symptom list, treatment section, research section, ability scale, and much more.

Once you've seen the site, please pass this email on to any and all M.E. or CFS sufferers (and anyone else you know) and help to get the word out. Knowledge is power!

Best wishes.


To copy text: Highlight text and then press Ctrl + C
To paste text: Place your cursor in the main text area of your new email and press Ctrl + V (then do the same to copy the subject header onto your email)

Send this text as is (the easiest option!) or customise it by adding some of your own comments (or even just your name and your friend's name) if you wish.





Tell a friend about a specific paper on the site..

You can also tell a friend, doctor or family member not just about this site, but about a specific paper or section of the site.

Cut and paste the text below into a new email to send one or more recommendations of different papers to a friend, doctor, or family member or even a whole group of people you would like to see them - the more the better!

Instead of making 20 or 30 separate template letters for each of the different sections, I've made one big letter so instead you need to merely delete all the sections you don't want to recommend to people.

(Copy only the text between the lines)


Subject header: Information for you to see on A Hummingbirds Guide to M.E.

Hi,

I just read something really interesting online on the 'A Hummingbirds Guide to M.E.' website that I think you might like to see too.

If you haven't seen it/them already, check out:

 

The Misdiagnosis of Chronic Fatigue Syndrome -This paper answers the question: If none of the definitions of CFS defines Myalgic Encephalomyelitis (and they don't) what do they define? What does a diagnosis of CFS actually mean? Is every diagnosis of CFS actually a MISdiagnosis? This is essential readinmg for anyone with M.E. and especially everyone who identifies as having CFS - this information needs to get out to EVERYONE who has a CFS diagnosis. See: www.ahummingbirdsguide.com/misdiagnosis.htm

What is Myalgic Encephalomyelitis? - A historical, political and medical overview of M.E. and CFS. This paper is a must-read! See: http://www.ahummingbirdsguide.com/whatisme.htm

Myalgic Encephalomyelitis: The Medical Facts - A purely medical overview of the illness (not muddied in any way by 'CFS' or fatigue) including detailed research findings. See: http://www.ahummingbirdsguide.com/methemedicalfacts.htm

Testing for Myalgic Encephalomyelitis - An overview of some of the series of tests which can be done to help confirm a suspected M.E. diagnosis (plus further information on many other aspects of diagnosis). See: http://www.ahummingbirdsguide.com/testingforme.htm

Myalgic Encephalomyelitis Research and Articles A collection of literally HUNDREDS of some of the best M.E. research and articles, from some of the worlds leading researchers, doctors and M.E. advocates. Sections include: M.E. outbreaks, M.E. and children, viral research, cardiac research, the severity of M.E. and many more. See: http://www.ahummingbirdsguide.com/researcharticles.htm
 
Putting Research and Articles into Context Because of the politics and financial interests involved in M.E. research it is important that before you read anything about the illness that you understand the context in which it was written. See: http://www.ahummingbirdsguide.com/researchincontext.htm

Smoke and mirrors This paper looks at the lack of evidence (and financial and political motivations) behind the 'behavioural' model of M.E. and outlines a strategy for the resolution of the confusion caused by the 'CFS' disease category. See: http://www.ahummingbirdsguide.com/cbtandget.htm

The effects of CBT and GET on patients with Myalgic Encephalomyelitis - This paper looks at the physical effects of CBT (psychotherapy) and GET (exercise) on patients with M.E. See: http://www.ahummingbirdsguide.com/cbtandgeteffects.htm

The myths about Myalgic Encephalomyelitis lists some of the most common myths about the illness. See: http://www.ahummingbirdsguide.com/themythsaboutme.htm

The CBT and GET database is a comprehensive guide to the use of CBT and GET on patients with Myalgic Encephalomyelitis. It contains excerpts and links to literally hundreds of articles and research studies which expose the lack of scientific legitimacy (and the hidden financial and political motivations) underlying the 'behavioural' paradigm of M.E. and the use of these interventions. See: http://www.ahummingbirdsguide.com/cbtandget.htm

Case Studies - features case studies of many different people with M.E. See: http://www.ahummingbirdsguide.com/casestudies.htm

The Ultra-comprehensive Myalgic Encephalomyelitis Symptom List - Most symptom lists are based on the bogus 'fatigue' model and so leave out all the neurological, cardiac, cardiovascular, immune system and other symptoms which truly define the illness. A comprehensive symptom list is an important tool for anyone with M.E. See: http://www.ahummingbirdsguide.com/themesymptomlist.htm

Treating Myalgic Encephalomyelitis - The Basics Or: 'Help, I have M.E.- what on earth do I do now? Help!!!' is a guide to some of the basics you need to know to live with, cope with and to treat M.E. See: http://www.ahummingbirdsguide.com/treatingmethebasics.htm

Treating Myalgic Encephalomyelitis - Avoiding Overexertion Everything you need to know about the single most important thing you can do to give yourself the best chance at your best possible prognosis. See: http://www.ahummingbirdsguide.com/treatingme.htm

Practical tips for living with Myalgic Encephalomyelitis - See: http://www.ahummingbirdsguide.com/helpyhints.htm

3 Part Myalgic Encephalomyelitis Ability and Severity Scale A valuable tool for monitoring the course of your illness over time. See: http://www.ahummingbirdsguide.com/themeabilityscale.htm

A Million Stories Untold When you have M.E. it's hard to explain it properly to everyone around you when most of the time you are so ill you can barely remember your own name! This paper is designed to help explain to a sufferers family members and friends that M.E. has nothing to do with being tired and that all the rumours they may have heard about it aren't true. It explains all the facts using hard evidence from the world's leading M.E. experts and is fully referenced. A must-read for any 'disbelieving' friends and family members. See: http://www.ahummingbirdsguide.com/amillionstoriesuntold.htm

Fatigue Schmatigue explains how the fraudulent 'fatigue' construct of Myalgic Encephalomyelitis came into being (and how the M.E. community can play an active part in deconstructing this myth). See: http://www.ahummingbirdsguide.com/fatigueschmatigue.htm

 

Once you've seen these papers yourself, please feel free to pass this email on to any and all M.E. or CFS sufferers etc. (and anyone else you know) to help get the word out, if you are able to. Knowledge really is power!

Best wishes.


To copy text: Highlight text and then press Ctrl + C
To paste text: Place your cursor in the main text area of your new email and press Ctrl + V

Once you've deleted the sections you don't want to include, send this text as is (the easiest option!) or customise it further by adding some of your own comments (or even just your name and your friend's name) if you wish.





Help spread the word! Help stop the abuse!

There is a real need for legitimate information about M.E. as seen on this website (and others like it) to reach a wider audience.

This includes people with M.E., but also (just as importantly) all of those millions of people misdiagnosed with 'CFS' (who have any number of different diseases and illnesses and who deserve to be correctly diagnosed and correctly treated finally, every bit as much as those with M.E.) and of course doctors, politicians, the media and the general public.

(For example, the recent paper 'The Misdiagnosis of CFS'  needs to be read by as many people who identify as having CFS (but who don't fit the descriptions of M.E.) as possible. This paper really is aimed at helping those misdiagnosed with CFS (which is everyone!) rather than just M.E. sufferers.)

There is already more than enough good science available to prove our case beyond any doubt, as there has been for decades. This is not scientific debate, it is a political fight and always has been. (There is no scientific evidence at all to support the psychological or behavioural paradigm of M.E. and never has been. These theories are promoted purely for the benefit of political and financial vested interests. Scientifically they are pure fiction, and have been disproven many hundreds of times over.)

We don't need to wait for more science for things to change and to stop the abuse, we need to make sure people know about the mountain of irrefutable evidence which already exists, and to force action based on this science, and on the reality of the situation finally, and we need to start doing that right now.

Please help to spread the word about the reality of M.E. and about the non-existent disease category of 'CFS.' Knowledge is power!

Publicise this site (and others like it) as much as you can, and more importantly, publicise the IDEAS and FACTS on this site. Correct people when they say that CFS and M.E. are the same, or that CFS is a 'mysterious, medically unexplained' illness, or that CBT and GET help people with M.E. or even everyone with 'CFS.' Challenge the nonsense put out there about CFS and M.E by the CDC, Wessely, Lloyd and others like them.

Together, with enough education and enough guts, we can change things for the better for all of us, starting NOW!



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Copyright © by Jodi Bassett 2004 - 2008